Naomi had her usual Monday appt scheduled in the afternoon. I knew this was not really how things should be because she takes meds at 10am and should have some tests done right before she takes those meds. The front desk, however, insisted no appt was available Monday morning. On Monday afternoon, the nurse practicioner said she thought that I needed an afternoon appt. I assured her that the front desk insisted we come in the afternoon. They wanted us back Tuesday morning to test her therapeutic medication level since it was sipposed to be done before taking meds. We agreed to come back Tuesday.
While there on Monday and due to Naomi fighting this cold, she had some extra lab tests including influenza A and B, adenovirus, CMV, EBV and HHV. We also checked Naomi’s IgG level to see the strength of her immune system. The goal is to keep this level above 500. She has needed it twice since transplant and with her fighting something we thought she might need it again. The last time her level had been checked she was around 750 and that was 2-3 weeks earlier. We drew that lab test Monday and had tentative plans to give Naomi IVIG Tuesday or Wednesday, possibly while there Tuesday for the therapeutic Tacrolimus draw.
Tuesday was full of good news! Creatinine at 0.50 so her kidneys are happy; IgG at 693 and no IVIG needed; Her CBC was good too with ANC over 2500; reticulocyte count back up near 50,000 after looking suppressed by illness the past week or two; Influenzas A and B were both negative, too. As the week progressed, we learned that all the viral tests run were also negative and by Friday, Naomi was completely over the cold she had earlier in the week.
She ventured to Office Max with us today. She was so happy when I told her she could come along with me and Lauryn. She even went without a hat and put on ear rings. She is starting to feel more confident in her skin…. or I mean hair. Maybe I can get a good picture soon?
Here is my attempt at selfies when we went for frozen yogurt this week. I love the face mask on her wrist.