Today was a quick lab appt. Naomi’s hemoglobin and platelets were a bit lower this week. She was at 237 platelets; hemoglobin 10; ANC 3800. She has seemed very tired lately and lacking a bit of focus so the low hemoglobin wasn’t a huge surprise.
Over the next 2 weeks, she will have a series of tests: echocardiogram; bone age test; bone density test; and kidney filtration test. Since her creatinine and potassium have become an issue over the past 2 months, the kidney function test has become necessary. The dr here is also reaching out to Dr. Margolis to get a weaning schedule/plan for Naomi. We are all a little anxious to start coming off meds and seeing what her engraftment levels are. Those tests will be drawn next time we are in the office – in 2 weeks.
She was so excited to be able to put her hair into a ponytail!
Naomi was invited to skate at the Golden Knights practice arena. Her and Aaron had a great time. It was her first time on ice skates ever.