Over the past week the children have, two at a time, woken up with a sore throat, fatigue, and then the next day a runny nose and annoying but light cough. Naomi started it on Thursday. I notified her nurse via text of her symptoms and was told to monitor her for fever and report if temps went over 100.5 or she felt bad. Her temp went up to 99.9 once but then she napped and her temp went right down. By Friday evening she had a runny nose and was through it. I was so happy to see a runny nose. That means she has white blood cells. Her tranplanted immune system worked!
She continues to have weekly labs. Creatinine continues to be highish, in the 0.6 range which is the high end of normal. She still resists drinking even though I gave her my favorite canteen because she claimed it made it easier for her to drink……
We continue to melt in Las Vegas and mostly hibernate. Half way through July means half way to September and the shift towards cooler temps here. (I used to look forward to July and it was my favorite month until we moved here.) We are using the hot days to organize next year’s school schedules, print them and organize books according to who will use them. We ran out of library space again. I think we need to turn a whole room into a library.
Naomi attended a birthday party earlier this week. It was her first in-a-house social event. She hugged me repeatedly when I said she could go. Her Daddy picked her up after work and hung out a bit and he said she ran to him when he got there and cuddled on his lap and kept hugging him, too. We are looking for every opportunity for normalcy. I went to a workshop last week and then was a doula at a birth this past weekend. It was good for me to work some. I missed it.
I am still having a hard time getting a good photo of Naomi but she is so darn cute with her hair growing back. I have not said it out loud yet, but at the length her hair is at right now, when looking at her front the front, she REALLY looks like Micayah!